Friday, November 18, 2011
Wednesday, November 16, 2011
Sunday, November 13, 2011
Saturday, November 12, 2011
Blue Angels Homecoming
It's a family day! The boys love the Blue Angels and love to have GaGa in town. As a side note Hunter and Daddy went on a Volcano Simulator and had a blast! For anyone that knows Hunter knows his love of Volcanos and Lava!
Thursday, November 10, 2011
Wednesday, November 9, 2011
Tuesday, November 8, 2011
Monday, November 7, 2011
Exhausted
Hunter is always tired, his immunologist says that once he starts IVIG treatments his energy will be back, so hopefully that is true......well maybe I should be careful what I wish for heehee
A year of pictures: Day 1
Starting today I am going to take a photo of my boys playing, it will be fun looking back out how much they've grown.....
Sunday, November 6, 2011
Updates
Well I haven't posted since Hunter started having health issues so I thought
I would give everyone the basics to make sure we are all on the same page.
February 2011 was the start of Hunter's Health Nightmare, we found ourselves in the ER with Hunter after had dropped to the floor with unbearable stomach pain he was admitted to the hospital because he had 5 intussusceptions (his small intestine was telescoping into itself). After ultrasounds, nuclear x-rays, specialists, poking and prodding the doctors found scar tissue and enlarged lymph nodes in and around his intestines. So we were told his intestines were underdeveloped and he started a trial medication.
We thought this trial medication was the answer to our prayers; everything the doctors had been testing for seemed to be something of the past. Well this was true until August came around and the other shoe in a sense dropped.
After all the testing and retesting Hunter has been diagnosed with Common Variable
Immune Deficiency (CVID) in about a week and a half he will be starting IVIG
which is a Plasma Infusion. He will have to have these treatments monthly at
first in a hospital so he can be monitored closely, lasting anywhere between
3-5 hours. After a couple of months doing the IVIG treatments in the hospital
we will be having a nurse come to the house and teaching me to give him the
treatments at home. Doesn't that sound like a fun treat!!
There is some hope though that he could possibly outgrow this condition
sometimes children especially boys have an undeveloped immune system that can
develop into a normal working immune system by age 6. So right now our
immunologist is keeping him on this treatment until May to make sure he gets
through the flu and cold season without being hospitalized and then taking him
off of the plasma infusions for 3 months in the summer, making sure we monitor
his surroundings and then retesting his immune system at the end of August and
see what everything looks like then.
But in the meantime we are just lifting my little man up to the great
physician, and of course prayers are definitely appreciated.
February 2011 was the start of Hunter's Health Nightmare, we found ourselves in the ER with Hunter after had dropped to the floor with unbearable stomach pain he was admitted to the hospital because he had 5 intussusceptions (his small intestine was telescoping into itself). After ultrasounds, nuclear x-rays, specialists, poking and prodding the doctors found scar tissue and enlarged lymph nodes in and around his intestines. So we were told his intestines were underdeveloped and he started a trial medication.
We thought this trial medication was the answer to our prayers; everything the doctors had been testing for seemed to be something of the past. Well this was true until August came around and the other shoe in a sense dropped.
Just a Little Note
Sorry it's been a little bit....or shall I say a couple years...between posts. I'll make sure everyone stays posted on the happenings in the Kingsbury Family :)
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