Updates
Well I haven't posted since Hunter started having health issues so I thought
I would give everyone the basics to make sure we are all on the same page.
February 2011 was the start of
Hunter's Health Nightmare, we found ourselves in the ER with Hunter after had
dropped to the floor with unbearable stomach pain he was admitted to the hospital
because he had 5 intussusceptions (his small intestine was telescoping into
itself). After ultrasounds, nuclear x-rays, specialists, poking and prodding
the doctors found scar tissue and enlarged lymph nodes in and around his
intestines. So we were told his intestines were underdeveloped and he started a
trial medication.
We thought this trial medication was the answer to our prayers; everything
the doctors had been testing for seemed to be something of the past. Well this
was true until August came around and the other shoe in a sense dropped.
After all the testing and retesting Hunter has been diagnosed with Common Variable
Immune Deficiency (CVID) in about a week and a half he will be starting IVIG
which is a Plasma Infusion. He will have to have these treatments monthly at
first in a hospital so he can be monitored closely, lasting anywhere between
3-5 hours. After a couple of months doing the IVIG treatments in the hospital
we will be having a nurse come to the house and teaching me to give him the
treatments at home. Doesn't that sound like a fun treat!!
There is some hope though that he could possibly outgrow this condition
sometimes children especially boys have an undeveloped immune system that can
develop into a normal working immune system by age 6. So right now our
immunologist is keeping him on this treatment until May to make sure he gets
through the flu and cold season without being hospitalized and then taking him
off of the plasma infusions for 3 months in the summer, making sure we monitor
his surroundings and then retesting his immune system at the end of August and
see what everything looks like then.
But in the meantime we are just lifting my little man up to the great
physician, and of course prayers are definitely appreciated.
No comments:
Post a Comment